NCAP to Work with OI Foundation During OI Awareness Week

NCAP is pleased to announce that it will be working with the OI Foundation during OI awareness week, from May 6th to May 13th.  Osteogenesis imperfecta (OI) is a rare and complex genetic disorder of the collagen that is often characterized by fragile bones.   There is no cure for OI but thanks to money raised at events such as this one, there are now treatments available to manage symptoms, minimize fractures, enhance independent function and promote general health.  The OI Foundation is a non-profit that helps families with the disorder and sponsors studies that will hopefully lead to a cure.  For people with OI, swimming is the most prescribed physical activity option available, and often times is the only psychical activity that they can do.

NCAP is hosting a swim clinic on May 7th from 8-9:30am at the Lee District RECenter for families with OI.  The clinic will be led by Seth Stubblefield.  Seth is a national team member and is currently working with individuals with OI as a research assistant in the department of Orthopedic Surgery and Sports Medicine at the Children’s National Medical Center.  Seth is also asking NCAP families to donate to the OI foundation, if they feel so inclined, to help the OIF inch closer to a cure.  100% of the proceeds go to furthering research endeavors and ensuring that people with OI receive the care that they desperately need.

If you have any questions, concerns, or would like to become more involved, please feel free to reach out to Seth at stubblefieldseth@gmail.com or visit http://www.oif.org.

Letter from Seth Stubblefield

Link to Donate to the OI Foundation

Vignette on Tearrianna Cookestarkey

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